Sep
Penetanguishene Mental Health Centre Abuse- Kulmiye Aganeh
“Imagine the worst thing one human being could do to another and know it has been done”
Gavin DeBecker - The Gift of Fear
http://penetanguishenementalhealth.blogspot.com/2009/09/penetanguishene-mental-health-centre.html
The role of the Office of Chief Coroner for Ontario, according to their own mission statement located on their website is “We speak for the dead to protect the living.” It then goes on to explain, “…serves the living through high quality investigations and inquests to ensure that no death be overlooked, concealed or ignored. The findings are used to generate recommendations to help improve public safety and prevent deaths in similar circumstances”. Unfortunately that could depend on what nationality you are and if you are diagnosed with a mental illness. It might also depend on who knows who or who’s turn it is to scratch who’s back.
On March 14, 2009, 22 year old patient Kulmiye Aganeh died while in the care of Penetanguishene Mental Health Centre, run by the government of Ontario. Some believe this facility is unfit for human habitation and one of the most barbaric treatment centers in Canada.
Kulmiye had been held involuntarily at Penetanguishene Mental Health Centre for 15 months. Prior to that, he was held at the Whitby Mental Health Centre for a period of 2 years, all the while his doctors experimented with medications that did not make him better but made him more depressed and more vulnerable. He was scared, isolated and lonely. He was also at the mercy of the staff at Penetanguishene. He had been transfered from a minimum security mental health facility in Whitby to Penetanguishene’s maximum security facility because he did not agree with the medication and treatment they were subjecting him to. He believed the drugs were making him ill, and they were!
Kulmiye had been admitted to the facility for treatment as a result of stealing a car. The young man was found not criminally responsible. At the time that Kulmiye stole the car he was hallucinating. Many believe this was the symptom of an illness, though it could have also been the side effects of the drugs he was taking.
He was assessed and diagnosed with schizophrenia. Prior to this diagnosis it was believed that he had bipolar disorder. However, when Kulmiye’s sister Ubah Aganeh spoke with his doctor from Penetanguishene, he told her that he did not have schizophrenia. During the act of committing the crime, violence was NOT involved. There were no weapons. According to family members Kulmiye was a gentle giant. Penetanguishene and comments left by Penetanguishene sympathisers “close to the situation” create their own version of Kulmiye as the big scary black man. Nothing could be further from the truth.
Going back four years, Kulmiye became depressed at the age of 18. It was then that he was likely mis-diagnosed with bipolar disorder. He was heavily medicated. The medication made him hallucinate and the side effects made him more depressed. This deeper depression as a result of the medication is more common than the pharma industry would like us to believe. It was then, while on medication, he began to hallucinate and stole the car. He also tried to stop taking his medication “cold turkey”. Now for those of us who are very familiar with psychiatric medications (practically and in theory) we know what the consequences are if you stop those meds “cold turkey”. Kulmiye believed that the medications were making him ill. He was likely right about that but four years ago, the truth about psychiatric medications were not as widely reported as they are today.
In July, Bob Fiddaman, author of Seroxat Sufferers, uploaded a story called “Leading The Lambs To Slaughter“. It was another story about Penetanguishene Mental Health Centre and the abuse of staff power. Many residents of Penetanguishene, who either work there themselves or have family members that work there, were angry about the story. Two months later, when Kulmiye’s story hit the news, it was reproduced on the blog. An interested party left a comment. Notice that not once did they refer to the victim by name. Not only that, they implied anyone whom expressed concern and disgust with Penetanguishene was obviously mentally ill and must be familiar with the wrong side of the law. The respondent referred to these people as “Obviously former patients of Oakridge”, which was completely false. The author who left the comment seemed completely at ease leading readers to believe Kulmiye deserved what he got as though he were some barbarian that had been on the loose. She also pointed out that the picture supplied for the news papers original report of Kulmiye’s death was not the way he looked while at Penetanguishene Mental Health Centre. As though a person’s physical appearance makes him more or less of a monster. Ubah Aganeh, Kulmiye’s sister told me that the picture had been taken in 2008 while at the Whitby Mental Health Centre. “Of course he did not look like that when he was at Penetanguishene. He had no water and was unable to shower daily”
Furthermore, the author of the comment did not express any sympathy to the family or the victim. This brazen and cold reply is a reminder of how dangerous an ignorant mind can be and that the problems we face as a society, with stigmas against mental health patients, is very real and heart breaking especially considering what we now know about Kulmiye Aganeh’s time spent at Penetanguishene.
While at Penetanguishene Mental Health Centre, Kulmiye was clearly abused by the staff. His rights were violated at nearly every single turn. Was his race the issue? Ubah Aganeh, Kulmiye’s sister, pointed out to me that in her brother’s medical records he was listed as a “landed Immigrant”. He was not. He was and will forever remain a Canadian citizen. Staff made it impossible for him to pray. The Muslim community should be outraged. I believe race may have been an issue. I also believe that this is simply the way Penetanguishene runs their facility. I believe this is as much about race as it is a side effect of the stigma that breeds uncontrollably at Penetanguishene. I believe it is about abuse of power.
In 2008 Kulmiye was held in isolation, most often restrained, at least 10 times and for as long as 46 consecutive days. In 2009, between January and March 14th he was confined to the same kind of barbaric isolation for at least 55 of the 73 days. Try to imagine being away from the people that you love and in a cell like this with no one to comfort you, nothing to draw your attention away from your circumstances. Just you, your mind and a staff that constantly reminds you that you have no control over your life and you are at their mercy with less rights than an animal.
When a patient is ordered to remain in isolation for longer than seven days, the hospital must present the patient’s case to a review board to prevent abuse of the system. Penetanguishene clearly thinks they run this province as they never did inform the review board at any time. His room where he was kept isolated and restrained for 23 hours a day was hidden behind a steel door that was behind bars, located behind a window. Kulmiye was denied a mattress to sleep on. He slept on a cloth such as the one you might use on your dining room table and only the use of a toilet. There was no sink or running water to maintain his own personal hygiene nor clean himself to prepare for his daily prayer which is a right in this country. Even if you murder another human being in cold blood, which the 22 yr old did NOT do, we all have a right to pray.
According to family members and his sister, whom he was very close to all of his life, her brother was a warm, caring person that had dreams of going to law school and loved to write. He wanted to get married some day.
While Kulmiye was drugged and isolated, the staff were cruel to him and made him wear a muzzle like a dog. He was often in wrist to waist restraints. If this is not soul destroying I don’t know what is. Are we supposed to expect that we can treat people with an illness this way and they will suddenly be cured? Kulmiye endured this horrific treatment for 15 months at the hands of Penetanguishene Staff. The isolation and confinement he was forced to endure and the muzzle was because staff said they were concerned about his aggression. “They said he spit on them”, Ubah Aganeh told me in a private email. I don’t particularly like peoples DNA flying around but I would imagine many would spit on them at this point mentally ill or not. In case he did display any aggression did his doctor not wonder if perhaps the medication was the cause? Medication combined with this kind of treatment.
What I know of Penetanguishene is that they are notorious for provoking patient outbursts, taking away their rights and being cruel and then drugging them to shut them up. I’m not sure if it is a game to them or just a hobby to pass time but you can’t treat people like animals and expect compliance let alone cure an illness. You are going to get a negative reaction and not because the patient is mentally ill but because the patients are human beings fighting for their lives. They want what we all want; fairness, kindness and caring. They want to keep as much of their dignity as possible and like anyone with any illness whether its bipolar disorder, depression, schizophrenia or cancer, we just all want to be healthy and lead a normal life. That is sometimes too much to ask for from certain staff members at Penetanguishene Mental Health Centre.
On the day he died, Kulmiye had been lead to “The sun room.” With him were four attendants. According to the staff “an altercation took place between Kulmiye and the attendants”. The attendants gained control of the situation and decided to take him back to the hole and isolation you would not condemn an animal to. They made the young man walk backwards. One attendant held him up by his chin. Once Kulmiye was back in his prison like cell which was more suited for Hannibal Lecter than a sick person with a legitimate illness that was there for treatment NOT punishment, the staff decided to inject him with 75 mgs of zuclopenthixol acuphase. This is a very powerful drug and is not without possible severe and life threatening side effects. Less than 10 minutes later Kulmiye Aganeh was lying dead on the floor. Staff had stood outside of the door, watching him die.
I’m curious to know why they injected him with 75mgs on this final day of his life when prior to that his medical records show he had been injected previously with no more than 50mgs. According to what I’ve read about this drug, that amount can be lethal. How could they not know that or did they?
The family lawyer’s first question was “Was the staff qualified to administer this type of medication?” According to the review I read on the drug that Kulmiye was injected with, the patient needs to remain in a upright position. That he was not leads me to believe the staff was either not qualified or else perhaps something else was going on. The staff put him on a mattress on the floor because he collapsed and could not stand up. What did they do at this point? Did they call for an ambulance? Did they call a code blue? No, they did neither.
Ironically Kulmiye died a few weeks after his sister wrote a letter of complaint. Initially Kulmiye did not want his sister to write the letter fearing the staff would retaliate and punish him for it. Ubah Aganeh wrote the letter. Penetanguishene received the letter but they did not acknowledge it to her directly nor to any other member of the family.
Not long after Penetangusishene had received the letter of complaint Kulmiye was allowed to make a phone call which had never happened at any time during the 15 months he was confined to Penetanguishene Mental Health Centre. Even in prison, inmates have a right to telephone their families but Kulmiye had been denied the right during his time at Penetanguishene Mental Health Centre with the exception of that one phone call. The staff explained to his family that calling his family was a privilege not a right! Is this Canada? Is this not the 21st century? Is it Penetang making their own laws now? And just how long and how often have they been doing it?
On the very same day the nurse instructed him to phone his sister and tell her everything was OK, he had been moved to a better room with a sink for bathing. Kulmiye was obviously confused by the change in the staff’s behavior. He asked his sister “Did you write that letter?” Ubah told him she had. He thanked her for taking care of their mother and doing all the things for her that he could not do himself. During the same phone conversation he told his sister he was afraid he was going to die there. Some people may think it was just a schizophrenics paranoid fear but there was nothing paranoid about it. On March 13th 2009 Ubah Aganeh contacted Penetanguishene wanting to know why she had not heard from her brother. She told them that she would contact the police if she did not hear from him by the following day. She was told that phone calls to family members are a privilege not a right. Ubah told them that she felt he was being abused and his life was in jeopardy. The staff member she spoke with told her she was exaggerating. The following day Ubah received a phone call telling her that her brother was dead.
The police were called. When they arrived at the scene three hours later the staff had cleaned up the room where Aganeh had taken his final breath, inside the cage that became home. Again, Penetanguishene Mental Health Centre clearly believes they can operate by their own laws and are not accountable like the rest of us, by the laws of our province and country. Clean up a potential crime scene? An ambulance was never called at any time, not even when they realized he had no pulse.
Kulmiye Aganeh’s family buried their son, brother and friend with unexplained bruises that covered his body and were accompanied by a black eye.
Kulmiye Aganeh was failed by the system put in place to protect him by a government we blindly trust far too often and without question.
Not only is the Ontario Coroner’s Office denying this young man (the victim) and his family their rights, Dr. Andrew McCallum has made the unilateral decision that the cause of death will not be released until after the inquest and when the decision of whether or not there will be a criminal investigation. This is not acceptable!
The family has a right to know what the cause of death was. It is the corner’s duty to be the voice of the victim and in this case, one of our most vulnerable members of society, but Dr. Andrew McCallum has decided to make up his own creative and mind boggling rules. He has told the family and their lawyer that the results of the autopsy (cause of death) will not be made available to the family until after the inquest takes place and when they decide if the 22 yr olds death warrants a police investigation. This process could take years and like every other parent that has ever lost a child, not knowing is as devastating and emotionally crippling as the death itself, perhaps even more so. What a disgusting thing to do to a mother. Has this family not been through enough?
It seems to me that in this case cruelty, abuse and ignoring the rights of Ontario citizens knew no bounds. To add insult to injury, the Manager of Operations with the Psychiatric Patient Advocate Office, who’s job it is to protect and advocate on behalf of patients, is refusing to speak with family and lawyers until the police investigation is over. If this is the case, then why do we even have this service? What is the point? Are we just creating jobs and a false sense of security for patients and their families? Ontario should be bending over backwards to assist this family in pursuit of truth for their loved one as well as every other mental health patient in the province of Ontario. Not only are they not doing this, they are setting up road blocks at every turn. This is not sitting well with anyone.
When Kulmiye’s mother confronted his psychiatrist about her son, accusing him of killing him, the doctor slammed his fists on the table and went off on a five minute rant. There are so many things wrong with this picture that I’m not quite sure where to start. Slammed his fists on the table? If a single patient at Penetanugishene were witnessed doing the same, they would be medicated and thrown into seclusion. What does Penetanguishene do when their own staff members demonstrate aggressive outbursts? Again, despicable behavior from someone who is suppose to remain professional and ethical at all times.
While our government does everything they can to stall and prevent the family and public from knowing the truth, the doors at Penetanguishene Mental Health Centre remain open. How many more patients will be subjected to this kind of treatment while we wait for the right people to do the right thing if there will ever be such a person in this case? Every single person or organization whose job it was to protect Kulmiye Aganeh failed. We want to know why. This is Canada, not a third world country. Those employed by the very government we elect don’t get to make up the rules as they go along. They don’t get to remove rights when it suits them.
As the present patients at Penetanguishene Mental Health Centre are directly affected by the outcome of this case and its poor management to date, the patients have banded together, hired their own attorney as they wish to be part of the inquest. I’ve often wondered why there have not been more patients come forward about the mistreatment at Penetang, but I think this article already answers that question. I want the patients who have decided to be strong and join together to know how brave they are and they do have rights. I want them to know that even though the Penetanguishene staff would like them to believe nobody cares, I do! There are many more people that care too. Ubah Aganeh, Kulmiye’s sister, wants you to know that she cares too and she is not going to let this be swept under the rug. She could not save her brother, but she is determined to help you and make sure you don’t end up in the same situation Kulmiye did. “This is not going to go away” she said.
In recent years the Canadian Mental health Association along with other mental health care advocates and of course pharmaceutical companies, with a financial interest in mental illness, have tried desperately to eradicate stigmas hoping more people will get mental health treatment for their undiagnosed illnesses. “It’s OK. Trust us. We are here for you. We care. We want to help you. One in four people will develop some form of mental illness in their lifetime. You are not alone. You have rights.” said the spider to the fly.
Who is it exactly that Dr. Andrew McCallum is working for? And who said that the staff at Penetanguishene Mental Health Centre could clean up a possible crime scene? Who said that Penetangusihene did not have to follow the rules when they subjected this young man to more than 7 days of isolation at any given time and without going before a review board? Who do they think they are to deny a person the right to pray? Who the hell is in charge in this Country and Province? We are! Not a bunch of shrinks, over paid coroners and psychiatric advocates appointed by the province who clearly don’t do what they are paid to do. I’m also wondering why all these organizations/people think they can get away with this. Is it because they have been doing it and getting away with it for a long time?
Kulmiye stole a car while under the influence of psychiatric medications with side effects that can easily mimic sever mental illness and can cause hallucinations. This could happen to anyone. Did the punishment fit the crime?
Dr. Andrew McCallum there is a mother that wants to know why her son is dead! The people of this province will be expecting you to fulfill your obligation in a timely manner.
“There is a funny smell coming from Penetanguishene Mental Health Centre. It smells like lies”
From the author; This is one of the most heart breaking stories I’ve ever heard. Hell will freeze over before I let it die.